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What Are the First Signs of Lewy Body Dementia (LBD)?

An elderly man holding his head in confusion, with an illustration of a neuron affected by Lewy bodies, indicating the first signs of Lewy Body Dementia (LBD).

Lewy body dementia (LBD) is a progressive brain disorder that causes a decline in thinking, memory, movement, behavior, and mood.

These deposits disrupt the normal functioning of nerve cells, leading to cognitive decline, motor impairments, and changes in behaviour and alertness. It shares some symptoms with Alzheimer’s disease but also has unique features.

Recognizing the early signs of LBD is crucial for timely diagnosis and effective management of the condition. By being familiar with these subtle clues, individuals and their families can seek appropriate medical attention and access the support they need to navigate through the challenges presented by this lesser-known form of dementia.

An Overview of Lewy Body Dementia

LBD is the third most common cause of dementia, after Alzheimer’s disease and vascular dementia. It affects an estimated 1.3 million people in the United States alone. LBD is characterized by cognitive decline, visual hallucinations, and motor symptoms similar to Parkinson’s disease.

Individuals with LBD often experience a wide range of symptoms that affect various aspects of their physical and cognitive functioning. In the early stages, these manifestations can be subtle and easily attributed to other causes, leading to delayed diagnosis.

Early signs of LBD can vary from person to person, but common symptoms include:

  1. Cognitive impairment: This may manifest as memory loss, difficulties with attention or problem-solving, and a decline in executive function.
  2. Visual hallucinations: People with LBD often experience vivid, recurring hallucinations, usually of people or animals.
  3. Motor symptoms: These can include slow movements, muscle stiffness, tremors, and problems with balance and coordination.
Common Symptoms of Lewy Body Dementia

Understanding the importance of recognizing its early signs

Early diagnosis and intervention remain paramount in the management of LBD. While a definitive cure currently remains elusive, prompt identification and implementation of appropriate therapeutic strategies can effectively mitigate symptoms and improve the quality of life for both individuals with LBD and their caregivers.

By recognizing the first signs, medical professionals can provide appropriate treatment and support. Additionally, early diagnosis allows individuals and their families to plan for the future, including making necessary arrangements for care and financial decision-making.

It is important to note that LBD can be challenging to diagnose accurately, as its symptoms can overlap with other conditions, such as Alzheimer’s disease or Parkinson’s disease. However, ongoing research is improving our understanding of LBD and aiding in its diagnosis.

Cognitive Symptoms

Lewy Body Dementia (LBD) affects various aspects of cognitive function, making it vital to recognize the first signs of this condition. This section will explore two key cognitive symptoms associated with LBD: memory problems and difficulties with thinking, and visual hallucinations and executive dysfunction.

Cognitive Symptoms 1

Memory problems and difficulties with thinking

One of the early signs of Lewy Body Dementia is cognitive impairment, particularly in terms of memory and thinking abilities. Individuals may experience problems with short-term memory, such as forgetting recent events or experiences. They may also struggle with attention, finding it difficult to concentrate or stay focused on tasks. Additionally, difficulties with problem-solving and executive function can arise, leading to challenges in planning and organizing daily activities.

Visual hallucinations and executive dysfunction

Visual hallucinations are another common symptom of Lewy Body Dementia. People with this condition may see vivid, recurring images of people or animals that are not actually there. These hallucinations can be distressing and impact daily functioning. Alongside visual hallucinations, individuals may also experience executive dysfunction. This refers to difficulties in decision-making, abstract thinking, and multitasking. Activities that require planning and organizing, such as managing finances or following complex instructions, may become increasingly challenging for those with LBD.

Recognizing these cognitive symptoms early on is crucial for prompt diagnosis and appropriate management of Lewy Body Dementia. If you or someone you know is experiencing memory problems, difficulties with thinking, visual hallucinations, or executive dysfunction, it is important to consult with a healthcare professional for a comprehensive evaluation. By seeking early intervention and support, individuals with LBD can receive the care they need to enhance their quality of life and effectively manage the condition.

Motor Symptoms

Lewy Body Dementia (LBD) is a complex neurodegenerative disorder that affects various aspects of motor function. Recognizing the first signs of motor symptoms associated with LBD is essential for early diagnosis and appropriate management of the condition. This section will explore two key motor symptoms commonly seen in LBD: Parkinsonism and movement issues, and frequent falls and muscle rigidity.

Motor Symptoms 1

Parkinsonism and Movement Issues

Another symptom of Lewy Body Dementia is Parkinsonism, which refers to the presence of symptoms similar to Parkinson’s disease. Individuals with LBD may experience a tremor or shaking of their hands, arms, legs, or other parts of the body. They may also exhibit stiffness in their muscles, making movement slow and difficult. This can lead to a shuffling gait and a lack of coordination. Additionally, individuals may face challenges with balance, resulting in an increased risk of falls.

Frequent Falls and Muscle Rigidity

Frequent falls are a common motor symptom of LBD. The combination of muscle stiffness, impaired balance, and coordination difficulties can increase the likelihood of falls, leading to potential injuries. Muscle rigidity, characterized by stiffness and resistance during movement, can also contribute to difficulties in performing everyday activities. Tasks that require fine motor skills, such as writing or buttoning clothes, may become challenging for individuals with Lewy Body Dementia.

If you or your loved one is experiencing Parkinsonism, movement issues, frequent falls, or muscle rigidity, it is vital to consult with a healthcare professional for a comprehensive evaluation. Prompt intervention and appropriate management strategies can help improve mobility, reduce falls, and enhance the overall quality of life for individuals living with LBD.

Sleep and Behavioral Symptoms

Lewy Body Dementia (LBD) is a complex neurodegenerative disorder that affects not only motor function but also sleep and behavioral patterns. Recognizing the first signs of sleep and behavioral symptoms associated with LBD is crucial for early detection and management of the condition. In this section, we will explore two key symptoms: REM sleep behavior disorder (RBD) and excessive daytime drowsiness, as well as depression, anxiety, and changes in behavior.

Sleep and Behavioral Symptoms 1

REM Sleep Behavior Disorder and Excessive Daytime Drowsiness

One of the prominent sleep symptoms of LBD is REM sleep behavior disorder (RBD). During REM sleep, a stage when we typically dream, our muscles are relaxed and inactive. However, individuals with LBD may experience a disruption in this process, leading to the acting out of dreams. They may talk, shout, kick, or even punch while asleep. This can be alarming for both the individual and their sleeping partner. Excessive daytime drowsiness is another common sleep symptom, causing individuals with LBD to feel excessively tired and fatigued during the day, regardless of the amount of sleep they get at night.

Depression, Anxiety, and Changes in Behavior

LBD can also bring about significant changes in an individual’s mood and behavior. Depression is a frequent symptom, characterized by persistent sadness, loss of interest in activities, and feelings of hopelessness. Anxiety is another common occurrence, with individuals experiencing excessive worry, restlessness, and feelings of apprehension. Moreover, changes in behavior, such as irritability, agitation, aggression, or apathy, may be observed in individuals with LBD. These changes can have a profound impact on the individual’s overall well-being and quality of life.

Autonomic Dysfunction

Autonomic dysfunction is a common feature of Lewy Body Dementia (LBD) and can manifest in various symptoms that affect the autonomic nervous system, which is responsible for regulating involuntary bodily functions. In this section, we will explore two key symptoms of autonomic dysfunction in LBD: orthostatic hypotension and dizziness, as well as urinary problems and constipation.

Orthostatic hypotension and dizziness

Orthostatic hypotension refers to a drop in blood pressure when transitioning from lying down or sitting to standing up. In individuals with LBD, orthostatic hypotension can be a prominent symptom due to dysregulation in the autonomic nervous system. This can lead to dizziness, lightheadedness, and even fainting spells. It is important to monitor blood pressure regularly and follow strategies recommended by healthcare professionals, such as rising slowly from a seated or lying position and wearing compression stockings, to manage orthostatic hypotension and reduce the risk of falls.

Urinary problems and constipation

Urinary problems and constipation are also common autonomic symptoms in LBD. The autonomic dysfunction can affect the muscles and nerves that regulate bladder and bowel function, leading to urinary urgency, frequency, or incontinence, as well as difficulty in passing stools. These symptoms can be distressing and impact an individual’s daily life. It is important to communicate these issues to healthcare professionals, who can provide guidance on managing urinary problems and constipation through medications, dietary modifications, and other interventions.

Urinary problems and constipation


Lewy Body Dementia (LBD) is a neurodegenerative disorder that affects motor function, sleep, and behavioral patterns. Key motor symptoms include Parkinsonism, movement issues, frequent falls, and muscle rigidity. These symptoms can lead to impaired balance, increased falls, and potential injuries. Sleep and behavioral symptoms include REM sleep behavior disorder (RBD) and excessive daytime drowsiness, as well as depression, anxiety, and behavioral changes. Autonomic dysfunction, such as orthostatic hypotension and dizziness, is a common feature of LBD. Regular monitoring and following healthcare strategies can help manage these symptoms and improve the quality of life for individuals with LBD.

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Picture of Cherie Voise

Cherie Voise

Cherie Voise, inspired by personal experiences and driven by her role as an advocate, founded Voise Foundation to improve the lives of those with dementia. As the foundation's key content creator and blog author, she draws on her deep understanding of the disease, advocating for respect, dignity, and creative therapy avenues such as VST Music© and other programs. Cherie's heartfelt writings, fueled by empathy, resonate with readers, offering insight and stirring action. Become a part of this journey and together with Cherie, let's make a meaningful impact in the world of dementia care.