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What is Lewy Body Dementia? | Symptoms and Treatment Options

An older man in contemplation, looking upwards with a hand on his chin, with a detailed illustration of a neuron with Lewy bodies next to him. The accompanying text states "What is Lewy Body Dementia? Symptoms and Treatment Options," highlighting the topic of the visual.

Lewy Body Dementia (LBD) is a neurodegenerative condition that often goes undiagnosed or misdiagnosed, leading to challenges in both treatment and management.

This blog post aims to shed light on the complexities of LBD by exploring its defining symptoms and the various treatment options available. By understanding this specific form of dementia, individuals and their loved ones can better navigate the journey ahead.

What is Lewy Body Dementia?

LBD is characterized by the presence of abnormal protein deposits known as Lewy bodies in the brain. These protein deposits disrupt the normal functioning of brain cells, leading to cognitive and physical impairments. It is important to differentiate LBD from other types of dementia, such as Alzheimer’s disease or Parkinson’s disease, as the symptoms and treatment approaches can differ.

Further, it seems to affect significantly more males than women and usually starts at age 50 or older. Early on, before a diagnosis is established, people may have minimal symptoms and carry on with their daily lives largely regularly. They could be totally dependent on others for support and care while the illness is at its worst.

types of dementia

Symptoms of Lewy Body Dementia

Cognitive impairments and fluctuations: LBD commonly causes memory and thinking problems, similar to other forms of dementia. However, what sets it apart is the fluctuating nature of these symptoms. People with LBD may experience periods of improved cognition followed by sudden declines. Additionally, attention and alertness levels may vary significantly throughout the day.

Visual and perceptual difficulties: Hallucinations and visual misinterpretations are frequent occurrences for individuals with LBD. They may perceive things that are not there or misinterpret ordinary objects. Moreover, depth perception issues pose a challenge for them, potentially leading to falls and accidents.

Motor abnormalities: Unlike some other types of dementia, LBD often manifests with motor symptoms associated with Parkinson’s disease. These symptoms include tremors, muscle stiffness, and balance problems, increasing the risk of falls. Recognizing these motor abnormalities can aid in early diagnosis and appropriate treatment.

Sleep and behavioral disturbances: Disturbances in sleep patterns are prevalent in LBD. The rapid eye movement (REM) sleep behavior disorder, where individuals act out vivid and intense dreams, is a common symptom. Furthermore, LBD can cause changes in behavior, mood, and personality, leading to anxiety, depression, and irritability.

Symptoms of Lewy Body Dementia

Diagnosing Lewy Body Dementia

Diagnosing LBD can be challenging due to the overlapping symptoms with other forms of dementia. However, a combination of medical history assessment, physical examinations, cognitive evaluations, and diagnostic tests can help in the diagnosis. Here are some key steps involved in diagnosing LBD:

1. Detailed Medical History: The healthcare provider will review the patient’s medical history and discuss their symptoms, including changes in cognition, behavior, movement or sleep patterns. They may also inquire about any family history of dementia or Parkinson’s disease.

2. Physical Examination: A thorough physical examination is conducted to evaluate motor symptoms such as muscle rigidity, tremors, balance problems, and posture abnormalities associated with LBD. The presence of Parkinsonism features is a prominent characteristic of LBD.

3. Cognitive Evaluation: Neurocognitive tests are administered to assess memory, attention, language skills, executive functions, and visuospatial abilities. The evaluation aims to identify cognitive impairments that characterize LBD by using standardized assessments like the Mini-Mental State Examination (MMSE) or Montreal Cognitive Assessment (MoCA).

4. Behavioral & Psychiatric Assessments: Evaluating psychiatric and behavioral symptoms is crucial as patients with LBD often experience fluctuations in mood and behavior. Observations are made regarding hallucinations, delusions, depression, anxiety levels or apathy through interviews with both the patient and their caregivers.

5. Diagnostic Criteria: Diagnosis of probable LBD is based on established criteria such as the “McKeith criteria” for clinical diagnosis or “DLB consensus criteria.” These criteria provide guidelines for identifying characteristic features necessary to differentiate LBD from other dementias.

6. Imaging Studies: Neuroimaging techniques like magnetic resonance imaging (MRI) or computed tomography (CT) scans may be conducted to rule out other possible causes of dementia-like strokes or brain tumors and to detect structural changes associated with LBD.

Treatment Options for Lewy Body Dementia

While there is no cure for LBD, several treatment options aim to manage its symptoms and enhance the quality of life for affected individuals. Medications such as cholinesterase inhibitors can improve memory and cognition, while anti-Parkinson’s medications can help alleviate motor symptoms. Antipsychotic medications may be prescribed to address hallucinations and delusions, but caution must be exercised due to potential side effects.

cholinesterase inhibitors 1

Apart from pharmacological interventions, non-drug approaches play a vital role in managing LBD symptoms. Occupational therapy can assist individuals in maintaining independence in daily activities, while physical exercises help improve mobility and reduce falls. Supportive therapies, such as speech and music therapy, may contribute to overall well-being and cognitive stimulation.

music therapy dementia 1

Caregiver support and educational resources are equally important in the journey of LBD. Involving family and friends in the care plan can ease the burden on both the individual and their caregivers. Support groups and community organizations provide guidance, advice, and a platform for sharing experiences, enabling individuals and caregivers to cope effectively.

Coping Strategies for Individuals with LBD and Their Loved Ones

Communication is key in assisting individuals with LBD. Engaging in clear and concise conversations, allowing sufficient time for responses, and involving them in decision-making fosters a sense of control and autonomy. Creating a safe environment by removing potential hazards and implementing assistive devices can help reduce accidents and enhance the overall well-being of individuals with LBD. Encouraging engagement in social activities, hobbies, and interests can contribute to a higher quality of life.

Coping Strategies for Individuals with LBD 1


Understanding Lewy Body Dementia is crucial to identify its specific symptoms and explore appropriate treatment options. The recognition of cognitive impairments, visual disturbances, motor abnormalities, and sleep-related issues aids in prompt diagnosis and intervention. Although no cure exists, various medications, non-drug therapies, and caregiver support networks can significantly improve the lives of individuals with LBD and their loved ones. By unmasking the mystery surrounding LBD, we can work towards a future where the impact of this form of dementia is minimized.

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Picture of Cherie Voise

Cherie Voise

Cherie Voise, inspired by personal experiences and driven by her role as an advocate, founded Voise Foundation to improve the lives of those with dementia. As the foundation's key content creator and blog author, she draws on her deep understanding of the disease, advocating for respect, dignity, and creative therapy avenues such as VST Music© and other programs. Cherie's heartfelt writings, fueled by empathy, resonate with readers, offering insight and stirring action. Become a part of this journey and together with Cherie, let's make a meaningful impact in the world of dementia care.